Friday, August 2, 2013


HOT OFF THE PRESS!!!  I can barely breathe; I'm so excited!!! FDA issued the update below today DEFINING Gluten Free (which us Celiac's have been waiting years for)!

My sincere hope is FDA will now test imported products that make "GLUTEN FREE" claims, and assure these companies are legitimately using the gluten free claim - and enforce and penalize those that are importing misbranded product and not correctly utilizing the gluten free claim!  The "COMPLIANCE DATE" for this final rule is August 5, 2014.  If you see products labeled "gluten free" you should be able to TRUST that those products legitimately do not contain gluten.  Now, we have a standard. They will contain LESS than 20 parts per million of gluten.

This is a fantastic start!!!  Here's what the FDA had to say, and the actual FINAL RULE is included as a hyperlink at the end. 
FDA defines “gluten-free” for food labeling 
New rule provides standard definition to protect the health of Americans with celiac disease
The U.S. Food and Drug Administration today published a new regulation defining the term "gluten-free" for voluntary food labeling.  This will provide a uniform standard definition to help the up to 3 million Americans who have celiac disease, an autoimmune digestive condition that can be effectively managed only by eating a gluten free diet.
“Adherence to a gluten-free diet is the key to treating celiac disease, which can be very disruptive to everyday life,” said FDA Commissioner Margaret A. Hamburg, M.D. “The FDA’s new ‘gluten-free’ definition will help people with this condition make food choices with confidence and allow them to better manage their health.” 
This new federal definition standardizes the meaning of “gluten-free” claims across the food industry. It requires that, in order to use the term "gluten-free" on its label, a food must meet all of the requirements of the definition, including that the food must contain less than 20 parts per million of gluten. The rule also requires foods with the claims “no gluten,” “free of gluten,” and “without gluten” to meet the definition for “gluten-free.” 
The FDA recognizes that many foods currently labeled as “gluten-free” may be able to meet the new federal definition already. Food manufacturers will have a year after the rule is published to bring their labels into compliance with the new requirements.

“We encourage the food industry to come into compliance with the new definition as soon as possible and help us make it as easy as possible for people with celiac disease to identify foods that meet the federal definition of ‘gluten-free’” said Michael R. Taylor, the FDA’s deputy commissioner for foods and veterinary medicine.
The term "gluten" refers to proteins that occur naturally in wheat, rye, barley and cross-bred hybrids of these grains.  In people with celiac disease, foods that contain gluten trigger production of antibodies that attack and damage the lining of the small intestine. Such damage limits the ability of celiac disease patients to absorb nutrients and puts them at risk of other very serious health problems, including nutritional deficiencies, osteoporosis, growth retardation, infertility, miscarriages, short stature, and intestinal cancers.  
The FDA was directed to issue the new regulation by the Food Allergen Labeling and Consumer Protection Act (FALCPA), which directed FDA to set guidelines for the use of the term “gluten-free” to help people with celiac disease maintain a gluten-free diet.
The regulation was published today in the Federal Register.

Friday, July 12, 2013

Does Your Primary Doctor Speak Celiac? If so, SHARE!

I feel like this guy when I think of continuing care for a Celiac.  Maybe you feel the same, hence why I'm writing...  We ALL have our crazy journey's before getting diagnosed with Celiac disease... My big question is... THEN WHAT?

So... You're on a gluten free diet... BUT, what about your continuing care???

I want to hear from YOU and want your recommendations.

Do you have a primary physician or nutritionist that's a rock star?  If so, name drop here, and more importantly, SHARE WHY!  Do you do testing every so often, do you check vitamin levels, what? 

As I'm looking for a new primary doctor, I want one that speaks Celiac - that gets what my body has gone through and knows what to look out for during regular check ups to keep me on track.  Suggestions welcome - rock stars only - and South Florida area.

If you're provider does something specific - SHARE and TEACH us - so we can bring this information to our doctors.


Monday, July 8, 2013


So impressed with this FREE celiac screening event - had to spread the word.  You need to as well.  
FREE Community-Wide Celiac Blood Screening
sponsored by the
Date: Saturday, October 26, 2013
Location: So. Florida Gastroenterology
Dr. Matthew Bromer
1325 So. Congress Ave, Suite 211 Boynton Beach, Florida

This screening is NOT for anyone who has been diagnosed with Celiac Disease. This test is for:
  • at-risk individuals who have family members with CD
  • those with symptoms related to CD, or 
  • individuals affected by other autoimmune disorders commonly associated with CD.
This is your chance to encourage your friends, neighbors, co-workers & family members to finally be tested.

In early September we will post info on how to make your appointment.  

For additional info now you can e-mail Nancy Hoffman at

Tuesday, November 20, 2012

Ina's - Not Just My Mom's Name

Ina, aka the Breakfast Queen, in Chicago, Illinois knows all about being gluten-free accommodating.  Yes, my mom's name is also Ina, so I was doubly intrigued to find out if Ina's was all I heard it was cracked up to be. Ina, a leader in the effort to ban artificial trans fats, opened up Ina's Kitchen in 1991.  Ina understands and teaches cross contamination and is a hands on owner.  Her menu has GF all over it to signify those options that are gluten free accommodating.  

Tuesday, November 6, 2012

Rent or Nobu 57?


Nobu has 24 locations world wide.  I was fortunate to dine at Nobu 57, in NYC.  If I had to summarize the experience (and yes, Nobu is an experience) into one word, it'd be WOAH!! Expensive, oh yeah (but, what isn't in New York?)!! Worth it?  Read on!

Tuesday, October 30, 2012

Sprinkles Cupcakes - Get Um' in an ATM too!

Sprinkles Cupcakes makes a delish' gluten free red velvet cupcake and a plethora of other (unfortunately non gluten free) cupcakes. I was recently in Chicago, and read rave reviews about their gluten free cupcake, so I had to try it for myself, right?!

Here are all the cupcakes, top left is red velvet

Tuesday, October 23, 2012

Gluten-Free Crepes Available for Catering - Exclusive Interview

Chef Jonathan Bierley Sr. of Miami Crepes gave me some great news.  Chef Jonathan said:
"more and more customers are asking for gluten free and vegetarian options. It is becoming the new food revolution that other caterers neglect. This is why I have dedicated a section of my website and my business to fill this void and to inform people of the gluten free choices that are out there in the world."
Chef Jonathan was kind enough to let me have ask him some questions about his new Gluten-Free catering - here's the dish:

Tuesday, October 16, 2012

Norwegian Epic Mediterranean Cruise - 5 Star Itinerary, 2 Star "Free" Food

When booking a vacation, Celiac's have to be extra special careful. I LOVE cruisin' and happened to be going to Europe for work - so why not add some fun time too?!

I decided to try a Mediterranean Cruise. The Norwegian Epic lined up perfectly with my schedule. The itinerary was a dream. Seriously, doesn't this look amazing (the port of call were!)??

Monday, October 8, 2012

Your Signature is Need for Gluten-Free Labeling Laws

The American  Celiac Disease Alliance is working diligently to urge the White House to force the FDA to create much needed Gluten-Free standards.  They created the below message and Petition to the White House, and need 25,000 signatures for the Petition to be heard.  Read below and sign if you agree that Gluten-Free standards are imperative for us Celiacs. 

Tuesday, October 2, 2012

Cafe Abbracci - AMAZING Gluten Free Pasta with Bolognese Sauce

Cafe Abbracci, in Coral Gables, a popular Italian restaurant, that will always have my business -- because they have the BEST gluten free pasta in the Gables.  I've actually become an addict and have to have my Cafe Abracci gluten free pasta with old School bolognese meat sauce regularly.  For $18, it's not the least expensive pasta - but, it's worth every penny.  Cafe Abbracci carries gluten free pasta on site, and you get to choose your sauce.  There are many pasta options, but I'm hooked on the meat sauce and can't even think of not having it.  I'm always ecstatic when local restaurants step up to the plate and accommodate us Celiac's - I'm thrilled to have Cafe Abbracci as a scrumptious lunch and dinner choice.